Avaliação da sobrecarga e qualidade de vida de mães de crianças com o Transtorno do Espectro do Autismo

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Miele, Fernanda Gonçalves
Amato, Cibelle Albuquerque de La Higuera
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Rocha, Marina Monzani da
Fernandes, Fernanda Dreux Miranda
Distúrbios do Desenvolvimento
Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder characterized by impairment in communication, social interaction and behavior. Atypical, repetitive and stereotyped behaviors can be observed, although they are not exclusive predictors of ASD. Families and caregivers of children with ASD present a high level of stress, compared to families and caregivers of children with typical development; Exposure to this overload influences the quality of family life of family members and caregivers. In accountability for the care of the child with ASD, women, especially mothers, are described as the main family caregiver. In the present investigation, we sought to qualify and discuss variables that may influence the level of overload and the quality of life of mothers of children with ASD. An exploratory study was developed, supported by elements of statistical inference from the quantitative approach of scientific research. A field survey was conducted with mothers of children with ASD, through the application of the Quality of Life Assessment (WHOQOL-bref) and Burden Interview Scale instruments (overload). The field study was conducted in 2016 at a Therapeutic Educational Center specialized in the care of children with ASD, in the city of São Paulo, with a group of 45 mothers of children with ASD, from which 20 participants were obtained. According to the results of the application of the WHOQOL-bref instrument, participants presented a quality of life considered regular in all domains studied. The Burden Interview Scale allowed overloading in 85% of the participants. When comparing the Burden Interview Scale and the Quality of Life Questionnaire, it was not possible to observe the relationship between the studied instruments and 50% of the study participants.
Transtorno do Espectro do Autismo , sobrecarga , qualidade de vida
MIELE, Fernanda Gonçalves. Avaliação da sobrecarga e qualidade de vida de mães de crianças com o transtorno do espectro do autismo. 2017. 57 f. Dissertação (Distúrbios do Desenvolvimento) - Universidade Presbiteriana Mackenzie, São Paulo.