Avaliação da sobrecarga e qualidade de vida de mães de crianças com o Transtorno do Espectro do Autismo
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Dissertação
Date
2017-07-19
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Authors
Miele, Fernanda Gonçalves
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Amato, Cibelle Albuquerque de La Higuera
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Rocha, Marina Monzani da
Fernandes, Fernanda Dreux Miranda
Fernandes, Fernanda Dreux Miranda
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Distúrbios do Desenvolvimento
Abstract
Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder characterized by
impairment in communication, social interaction and behavior. Atypical, repetitive and
stereotyped behaviors can be observed, although they are not exclusive predictors of
ASD. Families and caregivers of children with ASD present a high level of stress,
compared to families and caregivers of children with typical development; Exposure
to this overload influences the quality of family life of family members and caregivers.
In accountability for the care of the child with ASD, women, especially mothers, are
described as the main family caregiver. In the present investigation, we sought to
qualify and discuss variables that may influence the level of overload and the quality
of life of mothers of children with ASD. An exploratory study was developed,
supported by elements of statistical inference from the quantitative approach of
scientific research. A field survey was conducted with mothers of children with ASD,
through the application of the Quality of Life Assessment (WHOQOL-bref) and
Burden Interview Scale instruments (overload). The field study was conducted in
2016 at a Therapeutic Educational Center specialized in the care of children with
ASD, in the city of São Paulo, with a group of 45 mothers of children with ASD, from
which 20 participants were obtained. According to the results of the application of the
WHOQOL-bref instrument, participants presented a quality of life considered regular
in all domains studied. The Burden Interview Scale allowed overloading in 85% of the
participants. When comparing the Burden Interview Scale and the Quality of Life
Questionnaire, it was not possible to observe the relationship between the studied
instruments and 50% of the study participants.
Description
Keywords
Transtorno do Espectro do Autismo , sobrecarga , qualidade de vida
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Citation
MIELE, Fernanda Gonçalves. Avaliação da sobrecarga e qualidade de vida de mães de crianças com o transtorno do espectro do autismo. 2017. 57 f. Dissertação (Distúrbios do Desenvolvimento) - Universidade Presbiteriana Mackenzie, São Paulo.