Qualidade de vida de crianças e adolescentes com paralisia cerebral

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dc.contributor.advisorAssis, Silvana Maria Blascovi dept_BR
dc.contributor.advisor1Latteshttp://lattes.cnpq.br/6553900966729412por
dc.contributor.authorSilva, Priscilla Ludovico dapt_BR
dc.creator.Latteshttp://lattes.cnpq.br/0816435847082224por
dc.date.accessioned2016-03-15T19:39:54Z
dc.date.accessioned2020-03-19T15:19:56Z
dc.date.available2012-11-30pt_BR
dc.date.available2020-03-19T15:19:56Z
dc.date.issued2012-08-16pt_BR
dc.description.abstractCerebral Palsy (CP) is a group of permanent disorders of tone, posture and movement, attributed to non-progressive lesions of the developing brain which causes functional limitations. The severity of the motor function can affect the quality of life (QoL), which is the individual's perception of their position in life, when it comes to culture and value system where they live. Objectives: to evaluate the parent-reported child and adolescent with CP QoL and to correlate it with the severity of motor function and social support received by caregivers in their different domains (physical, emotional, social and school). Methods: The study included 43 primary caregivers of children and adolescents 6 to 14 years of age with CP being treated at the Associação de Assistência à Criança Deficiente AACD, São Paulo. Gross Motor Function Classification System - GMFCS was used to classify gross motor function. The patients were divided into three groups of severity: mild, moderate and severe. To evaluate the QoL, the instrument used was the Pediatric Quality of Life Inventory - 4.0 PedsQLTM and to evaluate the social support of caregivers, it was used the Social Support Questionnaire - SSQ. Participants also completed a single question about the meaning of QoL. Results: There was no difference between the scores of QoL in the three groups of motor impairment, there was only difference between the scores of the physical domain, indicating that as higher the motor impairment is, the physical domain will be lower. We found that satisfaction with social support received was the same for all groups, regardless the classification by the GMFCS, eventhough the number of people to support is greater for caregivers who reported worse QoL of children and adolescents with CP in the study. The definitions of QOL given by caregivers indicate the expectation of independence as the main factor for QoL. Conclusion: The search for better QoL should be part of programs to support caregivers and persons with CP, however, this search should be the goal for the present and not only a projection for the future.eng
dc.description.sponsorshipFundo Mackenzie de Pesquisapt_BR
dc.formatapplication/pdfpor
dc.identifier.citationSILVA, Priscilla Ludovico da. Qualidade de vida de crianças e adolescentes com paralisia cerebral. 2012. 82 f. Dissertação (Mestrado em Psicologia) - Universidade Presbiteriana Mackenzie, São Paulo, 2012.por
dc.identifier.urihttp://dspace.mackenzie.br/handle/10899/22505
dc.languageporpor
dc.publisherUniversidade Presbiteriana Mackenziepor
dc.rightsAcesso Abertopor
dc.subjectparalisia cerebralpor
dc.subjectqualidade de vidapor
dc.subjectapoio socialpor
dc.subjectdestreza motorapor
dc.subjectcerebral palsyeng
dc.subjectquality of lifeeng
dc.subjectsocial supporteng
dc.subjectmotor skillseng
dc.subject.cnpqCNPQ::CIENCIAS DA SAUDEpor
dc.thumbnail.urlhttp://tede.mackenzie.br/jspui/retrieve/3657/Priscilla%20Ludovico%20da%20Silva.pdf.jpg*
dc.titleQualidade de vida de crianças e adolescentes com paralisia cerebralpor
dc.typeDissertaçãopor
local.contributor.board1Saeta, Beatriz Regina Pereirapt_BR
local.contributor.board1Latteshttp://lattes.cnpq.br/8616985212179373por
local.contributor.board2Torezan, Ana Mariapt_BR
local.contributor.board2Latteshttp://lattes.cnpq.br/4548212895702560por
local.publisher.countryBRpor
local.publisher.departmentPsicologiapor
local.publisher.initialsUPMpor
local.publisher.programDistúrbios do Desenvolvimentopor
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