Produção e avaliação de video documental como recurso de orientação para pais e cuidadores de crianças e adolescentes com Síndrome de Williams-Beuren
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Arquivos
Tipo
Tese
Data de publicação
2015-08-04
Periódico
Citações (Scopus)
Autores
Lima Junior, Ismael de
Orientador
Carvalho, Sueli Galego de
Título da Revista
ISSN da Revista
Título de Volume
Membros da banca
Teixeira, Maria Cristina Triguero Veloz
Carreiro, Luiz Renato Rodrigues
Martins, Edna
Vóvio, Claudia Lemos
Carreiro, Luiz Renato Rodrigues
Martins, Edna
Vóvio, Claudia Lemos
Programa
Distúrbios do Desenvolvimento
Resumo
The aim of this study is to produce and evaluate an informative video and
guidance to parents and caregivers about the behavioral management of
people with Williams-Beuren syndrome. And also answer to the problem: "how
to contribute scientific and socially with the public who lives and works with
individuals with WBS?". The research allows possession of information on the
SWB contained in the work done by researchers related to our Theoretical
Framework. The syndrome is rare and is associated with neurocognitive and
behavioral phenotypes that should be understood as the basis for the research
of behavioral, emotional and cognitive patterns, without disregarding the
influence of the environment and its connection with intellectual deficit. Through
knowledge of symptoms, it is possible to help in the early diagnosis, providing
better handling with the individual and improved quality of life. To contribute to
this, we develop and produce a video guidance report for parents / caregivers,
whose central purpose is the dissemination of information and care for
individuals with Williams-Beuren syndrome. The video is available to parents
and caregivers, after being evaluated by professionals, undergraduates and
graduate students. This process finds an answer to the question "How to
donate?" and has come to an end after evaluation of all the groups, who
answered to questions about the effectiveness of information. The evaluation
was carried out with the participation of forty-six judges who answered to ten
objective questions about its content and development. We have as judges:
three professionals working in the area, eight graduate students, eleven
graduates in Psychology and twenty-four parents / caregivers of children /
adolescents with WBS. In eight questions of evaluation we obtained 100%
approval by 46 forty-six judges, revealing that the video has fulfilled its main
objective to contribute scientific and socially, to inform and guide parents /
caregivers of people with SWB. In conclusion, we can consider that the video
produced and evaluated in this thesis presents relevant guidelines and meets
the information needs of the target audience, with a proposal of easy
understanding. We understand that with this production, we can really
contribute to social development and information for parents and caregivers.
Descrição
Palavras-chave
Síndrome de Williams-Beuren , vídeo reportagem , deficiência intelectual , popularização da ciência
Assuntos Scopus
Citação
LIMA JUNIOR, Ismael de. Produção e avaliação de video documental como recurso de orientação para pais e cuidadores de crianças e adolescentes com Síndrome de Williams-Beuren. 2015. 69 f. Tese (Distúrbios do Desenvolvimento) - Universidade Presbiteriana Mackenzie, São Paulo.