Produção e avaliação de video documental como recurso de orientação para pais e cuidadores de crianças e adolescentes com Síndrome de Williams-Beuren

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Lima Junior, Ismael de
Carvalho, Sueli Galego de
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Teixeira, Maria Cristina Triguero Veloz
Carreiro, Luiz Renato Rodrigues
Martins, Edna
Vóvio, Claudia Lemos
Distúrbios do Desenvolvimento
The aim of this study is to produce and evaluate an informative video and guidance to parents and caregivers about the behavioral management of people with Williams-Beuren syndrome. And also answer to the problem: "how to contribute scientific and socially with the public who lives and works with individuals with WBS?". The research allows possession of information on the SWB contained in the work done by researchers related to our Theoretical Framework. The syndrome is rare and is associated with neurocognitive and behavioral phenotypes that should be understood as the basis for the research of behavioral, emotional and cognitive patterns, without disregarding the influence of the environment and its connection with intellectual deficit. Through knowledge of symptoms, it is possible to help in the early diagnosis, providing better handling with the individual and improved quality of life. To contribute to this, we develop and produce a video guidance report for parents / caregivers, whose central purpose is the dissemination of information and care for individuals with Williams-Beuren syndrome. The video is available to parents and caregivers, after being evaluated by professionals, undergraduates and graduate students. This process finds an answer to the question "How to donate?" and has come to an end after evaluation of all the groups, who answered to questions about the effectiveness of information. The evaluation was carried out with the participation of forty-six judges who answered to ten objective questions about its content and development. We have as judges: three professionals working in the area, eight graduate students, eleven graduates in Psychology and twenty-four parents / caregivers of children / adolescents with WBS. In eight questions of evaluation we obtained 100% approval by 46 forty-six judges, revealing that the video has fulfilled its main objective to contribute scientific and socially, to inform and guide parents / caregivers of people with SWB. In conclusion, we can consider that the video produced and evaluated in this thesis presents relevant guidelines and meets the information needs of the target audience, with a proposal of easy understanding. We understand that with this production, we can really contribute to social development and information for parents and caregivers.
Síndrome de Williams-Beuren , vídeo reportagem , deficiência intelectual , popularização da ciência
Assuntos Scopus
LIMA JUNIOR, Ismael de. Produção e avaliação de video documental como recurso de orientação para pais e cuidadores de crianças e adolescentes com Síndrome de Williams-Beuren. 2015. 69 f. Tese (Distúrbios do Desenvolvimento) - Universidade Presbiteriana Mackenzie, São Paulo.