Barriers to early identification of autism in Brazil

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dc.contributor.authorRibeiro S.H.B.
dc.contributor.authorde Paula C.S.
dc.contributor.authorBordini D.
dc.contributor.authorMari J.J.
dc.contributor.authorCaetano S.C.
dc.date.accessioned2024-03-13T00:48:23Z
dc.date.available2024-03-13T00:48:23Z
dc.date.issued2017
dc.description.abstract© 2017, Associacao Brasileira de Psiquiatria. All rights reserved.Objective: Parents of children with autism spectrum disorders (ASD) seem to perceive that their child’s development is not following the normal pattern as early as the first year of life. However, ASD children may not receive a diagnosis until they are of preschool age, especially in low-and middleincome countries. The objective of this study was to evaluate the pathway between initial parental concerns about atypical child development and ASD diagnosis in Brazil. Methods: Nineteen mothers whose children had been diagnosed with ASD participated and were interviewed. The ASD group consisted of two girls and 17 boys, with a mean age of 93.0 months (SD 48.4 months; range 39-197 months). Results: Mothers had their first concerns regarding ASD when children were 23.6±11.6 months old, but formal diagnosis occurred at a mean 6 SD age of 59.6±40.5 months, corresponding to a 3-year delay. Most mothers felt discouraged to address their concerns due to negative experiences with health professionals. Conclusion: In Brazil, mothers perceived the first signs of ASD in their children at an age similar to that reported in other countries, but the diagnosis of ASD seemed to be delayed. Consistent with the literature, mothers reported negative experiences with health professionals during the pathway to achieving ASD diagnosis.
dc.description.firstpage352
dc.description.issuenumber4
dc.description.lastpage354
dc.description.volume39
dc.identifier.doi10.1590/1516-4446-2016-2141
dc.identifier.issn1516-4446
dc.identifier.urihttps://dspace.mackenzie.br/handle/10899/35710
dc.relation.ispartofRevista Brasileira de Psiquiatria
dc.rightsAcesso Aberto
dc.subject.otherlanguageAutism spectrum disorder
dc.subject.otherlanguageDelayed diagnosis
dc.subject.otherlanguageLow-and middleincome countries
dc.subject.otherlanguageParental identification
dc.titleBarriers to early identification of autism in Brazil
dc.typeArtigo
local.scopus.citations31
local.scopus.eid2-s2.0-85034421872
local.scopus.subjectAdolescent
local.scopus.subjectAdult
local.scopus.subjectAutism Spectrum Disorder
local.scopus.subjectBrazil
local.scopus.subjectChild
local.scopus.subjectChild, Preschool
local.scopus.subjectDelayed Diagnosis
local.scopus.subjectFemale
local.scopus.subjectHumans
local.scopus.subjectMale
local.scopus.subjectMiddle Aged
local.scopus.subjectMothers
local.scopus.subjectProfessional-Family Relations
local.scopus.updated2024-05-01
local.scopus.urlhttps://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85034421872&origin=inward
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